Extract
[...] The cause is then left aside, or even forgotten, while it is consistency that will allow the progressive evolution of mentalities. But before anything else, it is necessary to start with the structures themselves, as well as the patients and their families. In his intervention, Richard Mesplède ('Demystify the disease », p.28) denounces the way protected units are perceived as places of exclusion: " the Alzheimer's patients [ . ] are designated as 'crazy' », even among individuals with pathologies. At the same time, patients are generally poorly informed about their condition or its evolution, which is why the idea of creating dialogue spaces to prepare patients psychologically for transfers to these units was born. [...]
[...] The construction of an inclusive society for people with Alzheimer's disease and other neurocognitive disorders is the guiding thread of all the interventions in this dossier. However, each article in the dossier explores this theme from a different angle, but whose presentations complement each other perfectly thanks to Alexandra Marquet's work. The opening sentence (and the paragraph written by Marquet) directly states the fact of the still too present isolation despite the efforts already generated: When the diagnosis falls, like a guillotine, it's often a feeling of panic that prevails. [...]
[...] In any case, this type of writing is not necessarily intended for professionals. It can be read by everyone, even by young children, since the text also has vignettes that capture attention. However, from a professional point of view, it highlights the importance of diversity. Reading and learning from other healthcare professionals will allow us to expand our knowledge and consideration. In addition, ' what's bothering us is the criterion of age and the negative representations of aging » (Isabelle Donnio, p.27). [...]
[...] The question of the exhaustiveness of the information provided then arises: yes and no. On the one hand, it is only a file presenting surface-level elements of interest for the general question, in the simplest form possible. For example, in comparison with the following articles national mobilization against social isolation: the MONALISA dynamic (Serres, Jean-François, 2016); The role of psychological and psychosocial interventions in people with dementia (Van der Linden, Martial, 2017); Developing therapeutic gardens in Île-de-France (Personne, Stéphanie, and Bentze, Laure, 2016)], the Marquet file does not explain the approaches presented, but only mentions them. [...]
[...] In a more educational perspective but still considering the importance of solidarity, Christine Bonnet presents "the 'Life with the disease' program » (p.28) of France Alzheimer Paris, a six-week cycle of weekly sessions allowing work in pairs (professional and volunteer) around knowledge of the disease, communication, and daily life. The goal is clear: to restore a form of expression and the power to act for those affected. This will first allow people to regain their voice (and way) again. However, it is possible to go even further. [...]
