Extract
[...] Even if as nurses we are very close to the families, I find that they are very poorly received, in psychiatry more than anywhere else. ( . ) We do not take into account the very essence of the person . (Nurse CMP). Thus, this feeling of coldness, of distance, by the parents, from the professionals, supported by various nursing testimonies, translates a lack of support towards the close relatives, justifying the legitimacy of their needs in relation to the medical sector. [...]
[...] At first glance, nothing seems to indicate such a decline in the relational aspect with the medical sector, as testified by this parent: « When he was hospitalized, the psychiatrist in charge it seemed he had a good relationship with him. It was good because all we wanted was to be able to trust someone. So we really relied on him? Then things started to evolved? ». Father, JH years old, sch. The degradation is such that the patient may be forced to change healthcare facilities, doctors on several occasions. [...]
[...] This situation inevitably leads to a relapse, a new hospitalization. « Our son wasn't taking his treatment, while saying the opposite to his doctor, so he relapsed. We had to hospitalize him because he physically attacked me. He can tell the psychologist that he's taking his treatment? It's his word against mine. As soon as he goes back home, he stops taking them. He even refuses to buy them himself. (Mother, JH years old, sch. Many caregivers have nonetheless highlighted the help of nurses, nursing staff and caregivers. [...]
[...] And for good reason, their distance from the information, the organization of the treatment or even the non-recognition of what they say or their educational action, this sows doubt on their parental abilities, from the closest caregiver to the deepest part of themselves. This goes as far as the difficulty of getting an appointment alone with the doctor who expresses himself without restraint. Here is the testimony of a mother, physically attacked by her son in front of her husband : « I was devastated. Because he didn't believe me. We had known him for four years, after all. I cracked. [...]
[...] Making up for the inadequacy of government measures through various associations is far from sufficient. In addition to granting adequate means to enable caregivers to fulfill their role, as they wish, towards family caregivers with greater ethics, personnel and training are needed to help them overcome the administrative and practical obstacles that punctuate the various paths. [...]
